Ms hug reddit. I started seeing people write about MS Hug.

Ms hug reddit. An MS eye twitch is 24/7 and stays with you for weeks/months - at least in my case - and is not related to lack of sleep, stress or stimulants. Meanwhile you already developed an anxiety disorder and things will get worse and worse. Hi all, I’ve been experiencing a constant MS hug since about August. r. Typically, the hug will last from several minutes to several hours, but it’s not a continuous pain over several months. it’s happened twice, and it’s debilitating. MS or parkinson. f. I took a ant-acid pill and the hug went away shortly after. It would come and go for at least 20 minutes. Oh boy that was painful. Conversations about support, research, drug therapies, nutrition, exercise, and more. Could this be MS Hug? One sided? comments sorted by Best Top New Controversial Q&A Add a Comment subscribers • LittleWaterSeal • My ms symptoms have been worse for the last week or so - tremors, weakness, numbness. I’d thought I’d post this on here as it may be helpful to some. I’ve had it happen briefly before but it just happened and lasted a minute or two. My first lesions were brainstem (Pons) and spine C 4-5 and T 7-8. Hey everyone. We talk often about the “common” ones like fatigue, pain, temperature intolerance, cognitive impairment, spasticity, speech issues, numbness, and depression. But what you're describing sounds more like Braxton-Hicks contractions plus a pregnancy with the baby being positioned high up under your rib cage, like my 2nd pregnancy, or a baby stretched out from bladder to ribs, like my 3rd pregnancy. MS Hug Constant Hey there, I’ve had MS for awhile now and have always had the MS hug pop up when I was relapsing. I'm just wondering if anyone experiences the same. Thank you. Not sure if this is a good option or if regular massage would be better. At its worst, it contracts every. It kind of feels like pressure, like it’s somewhat crushing me. Apr 29, 2022 · What was your first MS symptom? Mine — the one that made me realize something was really wrong — was my inability to squeeze the toothpaste tube with my left hand one morning. When all of that came back perfectly normal, then the MS hug was known to be the So, does anyone else deal with the MS Hug/girdle thing? Drives me crazy. muscle on the MS-affected side of my body, from the top of my head to the bottom of my toes. You could ask you doctor, I have lack of knowledge on MS hug. My MS hug is on the right side. I only got the MS hug after my last flare up - every day until the flare up died down. I've had cardiac issues outruled from a number of assessments, so it seems like just another unfortunate ms symptom. ! This thread is archived New comments cannot be posted and votes cannot be cast comments sorted In the same period my MS hug has gotten pretty bad and seems worse when my back and neck are hurting more . The phrase is an insult to the word hug and a terrible descriptor. He is well renowned, as he is the long-time head of neurology at a leading state-of-the-art MS facility. I've had MS 33 years. It sounds good New, Awaiting Diagnosis, Curious about MS Hug Symptoms Hi everyone, I’ve been watching this subreddit for awhile now, waiting to make a post. I was just curious what you guys do to help with the pain or do you just have to ride it out? Dec 12, 2023 · The MS hug is a collection of symptoms caused by spasms in the muscles around the ribs. c. I’ve been going through some intense health challenges since last year and I’m really wondering if this is the start of fibromyalgia for me. Also, WATER! Hydrate those muscles so they loosen their grip faster. I’ve dealt with the rib hugs. It affects the whole of my torso, the whole way around. This thread is archived New comments cannot be posted and votes cannot be cast comments sorted by Best Top New Controversial Q&A [deleted]• Additional comment actions [removed] Reply chaquarius m/29/rrms/tecfidera The one of you that has experience "ms hug" what are the characteristics of your chest pain????? And what you do to get rid of it??? Feeling desperate. I had the MS hug and all of its problems long before I ever had a spinal MRI. I’ve heard of Botox for the Is this ms or something else cause my doctor said usually ms hug is a fully wrap around is this possibly an mild version of it or something else. MS hug varies from individual to individual from being a slight annoyance, to extreme and frustrating encompassing pain. Just this invisible pressure that would intensify if I took too deep of a breath. Now I have a klonopin Rx but don’t have the Hug much anymore so I forget where I hid the pills. r/MultipleSclerosis Focusing on issues facing people with MS and their family and friends. Has anyone experienced this after an MS Hug? Does MS Hug feel like a heart attack? I am probably heading to the ER because I'm having bad chest pain but I'm not sure if I should go to the hospital where my neuro is based or the one where my cardiologist is based. It doesn’t hurt me to breathe but it is super uncomfortable and painful. Oct 4, 2024 · So the guy who got to choose my commander chose Ms. Wasted many dollars, days off work, and lots of time doubting professionals to have it confirmed, re-confirmed, and re-re-reconfirmed as the hug. I'm on Ocrevus, my next infusion is in a few days. So, yes, be very wary! I had MS hug on and off for years before my first brain lesion was ever seen. Hey y'all, hope everyone is doing well :) I just wanted to ask: what are some products that help alleviate some of your MS… We would like to show you a description here but the site won’t allow us. am interested in exact names so i can get exactly what helped you! Has anyone tried this? I am having a terrible MS hug the past few weeks (feels like a sandbag up my back) with a lot of spasticity. But I’m no doctor!. Please share your preferred nominees! One woman shares her MS hug symptoms, including the fear and physical pain of the first time it happened and how she manages it day to day. Rib cage, throat, shoulders, neck - and the muscles in my shoulder blades had tightened so much I had to go for a massage to get the knotts out. My abdominal muscles would start to contract and I would get a non-painful and kinda funny sensation of a fork being in my abdominal muscles that starts twirling and wrapping my muscles up (like spaghetti). And it start al over. Might sound like a daft question, but is it definitely the hug? I was suspected of having it, but it turned out to be something non-MS related. Hi all, I hope Ms has been kind to you all lately:) I'm writing in a state of panic, this feels like the right place to do so. At times, I feel like I can’t take a deep breath in. 10 votes, 18 comments. I also experienced a lack of any interest to eat and nausea. Is there something better that could help me? I’m completely miserable. It's described as being like receiving a painful bear hug. Share Sort by: Best Open comment sort options Best Top New Controversial Q&A Does anyone else with the “hug” suffer from muscle soreness afterwards? The stress of the pandemic and it’s effects, I feel like I have had the MS hug more than a few times, but even when it’s not obvious, the muscles on my sides are so terribly sore. Heating pad, turned on and off as tolerated (although use caution, sometimes heat makes the hug worse). Think spasticity, but with sudden onset and hours til it resolves. Jan 14, 2025 · While an MS hug often appears on its own and is not a sign of the worsening of one’s multiple sclerosis, if other symptoms flare-up at the same time, this may indicate that an individual is having an MS relapse. I also was afraid for MS but let it go eventually. Luckily, my "hug" is only on my right side just below the rib cage and starts from the exact middle of my abdomen and stops in the exact middle of my side. My MS hug is typically from below my ribs to an inch or so below my belly button! In terms of what you described about the severe stomach pain - I also had this about two weeks ago. One woman shares her MS hug symptoms, including the fear and physical pain of the first time it happened and how she manages it day to day. I’ve had MS for 42 years and, although the MS hug varies between people, what you describe doesn’t sound to me like the typical hug. Also, my 2 lesions, last flare, were affecting my upper left body/arm. It doesn’t wrap around, just in one circular spot. I just got over an 8 hour battle with the hug. Rib cage pain can happen with MS, called MS hug. ms hug, which compression item do you use/type of magnesium do you take/type of cbd/heating pad brand do you use, etc. o. Neurologist just told me the “MS Hug” doesn’t exist? Vent/Rant - Advice Wanted/Ambivalent I had a terrible day yesterday during my 6th annual appointment with my MS Neurologist. My GP prescribed some muscle relaxants that really help when it gets bad. An MS hug is a common symptom of multiple sclerosis (MS) that causes a tight, squeezing feeling around your ribs. New comments cannot be posted. It’s occasionally goes away for a few hours mid day. Bumbleflower. . Not trying to complain I was just wondering if anyone had tips on how to deal with it. I'm partial to MS Straightjacket and MS Boa. My neuro thinks it's the MS hug. For me it makes it so I can't seem to catch my breath. I'm not saying you have a MS. I’m trying to… Focusing on issues facing people with MS and their family and friends. This pain may be caused by the MS hug or other MS-related symptoms. Back to the neurologist demanding a MRI etc. I have no way of building a group hug deck. I feel extremely confused and sad that I have no one in my life to talk about these little things. It's kind of a relief when there really is something wrong, and it's not all in your head, so to speak. I just got my first big MS hug. Has anyone ever had a nerve block and has it helped you with your symptom (s)? I’m thinking of getting an intercostal nerve block or something of the equivalent to help with my constant MS hug. Those symptoms are gone but now I can’t eat much and food just runs right through me within 5 mins of eating (sorry if TMI). That happened to my ex (we both have MS). MS hug in my neck This is ridiculous. I’m wondering if that was a “hug” or if it was more likely some weird side effect because of the lumbar puncture I had on Thursday? For those of you who have this symptom what would you recommend for dealing with the pain or preventing it entirely? Mine starts with my throat tightening up like I was running in the cold, sweating, front ribs feeling like im being crushed, and then my body feel really heavy / exhausted. Some people find that it is painful to breathe. 360 degree involvement. Sometimes I have to trick myself into yawning bc that sometimes allows the full take in of air to fill my lungs. Since everyone gets their own flavor of MS, I’m curious to what y’all’s experience with the “hug” is like. Can someone describe what an MS Hug feels like? (Seeing neuro and cardio, neither party is sure if it's dysautonomia or MS, looking at both options… Focusing on issues facing people with MS and their family and friends. I woke up from a nap (yay nap!) and felt that something was squeezing the hell out of my upper ribcage. Maybe I'm drawing the wrong conclusion and connecting Pain in the back -> MS Hug but it's more like Pain in the back -> () -> MS hug , just not sure. the only thing I can’t seem to figure out is my MS hug. Sometimes I will get where I get them almost back to back, only then do I need to do anything about it as those normally hurt a lot worse than the random ones that hit every now and then (this can go on for days or weeks). I was wondering if methylprednisolone is used for this (is it a relapse) or is like fatigue, and just a part of MS. I have also experienced the MS hug, but the sensation is completely different, the hug seemed to feel like a corset around my ribcage, but I understand it doesn’t actually constrict breathing, it’s more like an uncomfortable feeling? Please let me know about your experiences and thoughts, I could really use some help and information right now. Whether or not your MS hug is related to a relapse for you, only your MS doctor can say. Hot pepper does the same if you like spicy food. Thanks to my last MS attack in 2019, my MS hug is now a permanent friend. I'm just wondering because it's not around my who middle, which is how I understand the "hug" to feel. Since September I’ve had the hug all day long. MembersOnline • spacemood MS hug frequency I know this varies just like the experience but I'm curious as to how frequently you experience the hug. Does the MS hug always include a feeling of tightness? Is it ever just chest pain? I woke up with severe chest pain that my doctor said seems like precordial catch. This temporary symptom can cause discomfort that can last for a few minutes to a few hours or longer. Since MS is so weird and different for everyone, I like to hear about what others experience. Multiple sclerosis is a disease that can cause a huge number of different symptoms that often vary from person to person. MS hug is mostly a short duration with pretty intense discomfort, could last seconds, minutes and some times hours, but then subsides a lot more then regular costo. But MS is not hereditary related disease. Is this the MS hug people describe or something else? MS hug, to my knowledge, is not based on movement (i. Mar 12, 2024 · The National Multiple Sclerosis Society reports that approximately 55 percent of MS patients deal with “clinically significant pain” intermittently. The feeling of tightness around your chest can be due to spasms in the small muscles between your ribs (the intercostal muscles) which help expand your chest when breathing" (from the multiple sclerosis trust). it took about 3-4 hours to release both time, but if this happened during the day I only got the MS hug after my last flare up - every day until the flare up died down. Almost like I did a million Russian twist crunches. It felt like all of my ribs wanted to break. Hey y'all, hope everyone is doing well :) I just wanted to ask: what are some products that help alleviate some of your MS… They did more testing and she had some other MS symptoms like numbness, bowel and bladder incontinence, memory and vision issues. I had no idea what it was and thought maybe I had gained some weight so my bra was too tight. I’ve experienced it that was as well, but most of mine come on quickly like a searing pain in my ribs and make it worse the more I inhale like stated above. When the right upper quadrant pain returned, I was run through a battery of tests to be sure there was nothing wrong with other parts of my digestive system. There are definitely periods where I notice my symptoms getting worse for like a week or so, especially if I'm dealing with difficult school assignments, tests, and work. Nothing. MS hug vs costochondtitis Hello lovely people, I would like insight into how Ms hug and costochondritis differ in terms of sensation, onset, duration, etc. At the end of 2019 was the first time I experienced the MS hug, and it has not dissipated. comments sorted by Best Top New Controversial Q&A Add a Comment subscribers 81adv •[deleted]• Heating pad, turned on and off as tolerated (although use caution, sometimes heat makes the hug worse). So yeah it’s not some false imaginary sensation. Any tips on the breathing thing would be Can an MS Hug feel like charley horses? I have started getting charlie horses right under my rib cage, and right under my shoulder blade, but not at the same time. I am not sure if I can assume this was a ms hug I was just watching a movie but I started feeling tense on my right shoulder and and right rib cage I… Focusing on issues facing people with MS and their family and friends. Once one set of nerves start going nuts they all wanna join in. I wish you all To add on to the hug/heart attack, she mentioned how stroke (where you have only 5 hours to get help) looks a lot like MS in some instances. The MS hug is a common MS symptom that can be hard to explain, and can be mistaken for other conditions. It’s extremely real and extremely painful. It starts as a tightening just under the ribs of my stomach and radiates around, and up and down, my torso, including the shoulder and hip. 13 votes, 22 comments. I had a small one a few days ago but I thought it was just a random pain. comments sorted by Best Top New Controversial Q&A Add a Comment subscribers •• 33F | SPMS: Apr 2023 | Canada & NY •••••• 26F | RRMS | •• 46|Dx’d 2007|Ocrevus|Delta Skylounge • My primary sympotom is MS Hug. From a patient's POV IMO the MS hug includes lots of other issues and oddities of muscles and systems all throughout your torso. I’m curious, does anyone else experience the MS Hug all of the time too? is BY FAR the worst symptom i’ve experienced with multiple sclerosis in five years since being diagnosed. Are you not finding relief of your MS hug with medications? My MS hug did not respond to Baclofen (a muscle relaxant) for very long, so now I use carbamazepine and gabapentin. IBS can often show up with MS, even though it's two different things. She would have a very hard time swallowing food because of her brain lesions on the part that helps control her esophagus. Opening up an audition for a new name. I can power through and know how to handle it /over medicate through it after a few years of practice. Reply PracticalPelican • Additional comment actions I believe I just experienced MS hug for the first time tonight. Symptoms, how to treat them, triggers for them…. I just read about the “hug” and it sounds like people are feeling like they’re being crushed, can’t breathe, etc. , i'll take any advice. n. I just got diagnosed with MS, but I had my first attack two years ago, and it was the MS hug. 😂😂😂 But I did learn taking a Benadryl (diphenhydramine) helped ease the Hug for me — when I thought it was anxiety. My ms nursing team, and volunteers I was talking with @ the MS society, labeled my symptoms as the ms hug but I felt it was a strange label. Apr 22, 2025 · Has anyone ever experienced an MS Hug? I used to be apart of some groups that mentioned it but I never experienced it and currently I think I am. If you do not have MS, it is something else. Had the hug intermittently from 1986 to 2019, when it became permanent. , it is there when stationary) and is much worse than what you're describing. And I have "Old Grandma" tricks that help with symptoms. I feel fine otherwise, and it’s gone now. A commander famously known for being a group hug creature. I have gotten palpitations sporadically since my appearance of MS, normally around the same time as flare up of ms hug. I’m We would like to show you a description here but the site won’t allow us. It’s just my stomach, abs specifically, not my chest or my sides. Once the flare up died out after 2 weeks the hugs stopped too. Reply reply Home Popular TOPICS r/MultipleSclerosis We would like to show you a description here but the site won’t allow us. Hope this helped. But that actually made no sense since it was only on one side and intermittent! After that came some other symptoms and the diagnosis process. com Jun 23, 2025 · People with multiple sclerosis may experience a symptom called the MS hug, which feels like a tight band around the chest or ribs, and it can be confused with costochondritis, an inflammation of the cartilage between the ribs. I know this isn't a heart attack because a decade ago, before diagnosed, I had the same thing and was ok via cardiologist. Another Redditor, who chose not to be named, uses ice in the form of a plastic bag of frozen vegetables. New comments cannot be posted and votes cannot be cast. The MS hug is a symptom of multiple sclerosis where you feel as if you have a tight band around your chest or ribs or pressure on one side of your torso. Anyways, have you guys ever seen a non-group hug bunny deck? I seriously have no idea if this is going to work. l. CT Scan is perfect. Locked post. Has anyone ever had this treatment for their hug? The technical definition of the MS hug is just the intercostal muscles. both times it woke me up from my dead sleep during the night, and i was on the floor trying to catch my breath and loosen up all my muscles that were locked. Why does the MS hug occur? The MS hug, like other MS-related neurological symptoms, comes from damage to an area of the spinal cord that sends nerves to the abdomen and chest. t. The MS Dx was a relief. It is always worst at the same time of day - early in the morning. The hug was bad this time. A minority of people say ice packs help; they used frozen veggies. No fever, no coughing. I drink hot water -- just plain boiled water -- which seems to help. Some have said it feels like a belt tightening around your chest, or a really painful bear hug. I frequently have similar contraction like sensations in my arms at the same time. I also felt indigestion to the point I threw up. Yours sounds muscular/intracostal. tl;dr: Does your MS Hug make you feel like you're going to die every time ot strikes? I've been dealing with MS for about ten years, though I was only diagnosed just over a year ago. MS was previously ruled out for me, but I’ve been having my second wave of rib/side/back pain going on three weeks on the right side. I went to the ER twice and all the doctors couldn’t find anything wrong. The MS hug for some folks is a painful contraction spasm of the muscles all around the torso that gets progressively longer over time. Ok, sorry. A few weeks ago it started to get really bad. Of course, there A few days ago I started getting one big tight cramp in my abdominal muscles, once a day. Turns out heart is fine, lung is fine, blood is fine, ribcage too. I unhooked my bra and I am just breathing deep and slow - about to apply a heating pad but damn this is u. Also having the usual numbness and going in for another MRI. How do you all differentiate between an anxiety attack and MS hug? ( I sometimes overthink and believe im having a great attack ) My symptoms are typical of an anxiety We would like to show you a description here but the site won’t allow us. I’m just over one year into my dx and am still figuring this whole thing out. This time it came back with a fury. I suggest medications. She has also experienced an MS hug as she calls it. based on your experience. See full list on multiplesclerosisnewstoday. Unexpected and weird MS symptoms Today, I want to talk about some of the lesser-known and stranger symptoms we The MS hug was one of my first pre-diagnosis symptoms. Side note, MS has a concrete test. Hence why I am posting this in the wee hours of the morning. also, the definition of ms hug: "The MS hug occurs because messages from nerves are blocked or disrupted by the damage caused by MS. She states her as lasted approximately two minutes for all the muscles in her tensed up and she couldn’t breathe. I recently had an MS hug, which knocked me out for a few days…was accompanied by leg weakness and crushing fatigue. Good luck with the ER! The MS hug is a diagnosis that is ruled in, rather than ruled out. Focusing on issues facing people with MS and their family and friends. I also felt nauseous and dizzy. An MS hug, is called that, because people with MS can have this symptom, generally due to lesions in their thoracic spine. The MS hug affects me around my chest but it still very much like I’m being girdled, or like there is an elephant sitting on my chest. We would like to show you a description here but the site won’t allow us. I’m taking baclofen and gabapentin 3x a day. I have been having an exacerbation for about 3 and a half weeks now. m. I understand there is a genetic component to MS. You can't miss it or escape it - you feel like you're suffocating. Let me know how your pain manifests and maybe some strats on how you deal with it. The MS hug is the main issue I have been dealing with on a daily basis since my dx in 2012. Yes, difficulty breathing was definitely a symptom I have from MS. I also sit with a heating pad on the most painful part of the hug, so I move the heating pad from my chest to my back to my side, wherever it is most needed. It comes on suddenly but starts off light and slow and gradual worsens for the next few following seconds. Eventually I sought help from my MS Specialist, and medications, fives times a day, are now used to keep it {mostly} under control. Hey, I am having this symptom for the first time. Focusing on issues facing people with MS and their family and friends. My MS hug reminded me of wearing a corset too tight. Was curious to know what is the difference? Or is there a difference in symptoms? Randomly got a very sharp stabbing pain mostly on the left side of my torso / rib cage / back and it was extra sharp when I took a breath. It’s like a tightness around my bra Focusing on issues facing people with MS and their family and friends. Woke up today with a definite hug happening from my collarbone to where my neck and head join. It sounds like you have nothing to be concerned about, but you can also just insist on getting a scan to determine if lesions When I experienced the MS hug it literally felt like a body builder had grabbed me from behind and was squeezing my ribs in a tight hug or another way to describe it all the muscles around my chest and back at rib height contracting like in childbirth all at once. With what bulk I had, I made a +1/+1 counter deck. Archived post. It’s in my chest/collarbone/neck and it’s very debilitating. a. My meds have kept new lesions away for the full 5 years since diagnosis. I just got hit by the MS hug for the first time How How do you cope with it? Edit: Just realized you titled it MS Hug - it definitely sounds like you are experiencing symptoms. I didn’t even consider it might be MS related until my partner asked about the MS hug. I can barely move or hold my head up. My gallbladder was taken out in 2008. I started seeing people write about MS Hug. Currently I’m on baclofen 10mg 3x daily and gabapentin 300mg 3x daily but the hug pokes through regardless. b. The worst of it is the feeling that someone has put a steel wire around 18 votes, 20 comments. I’ve never had this before but it looks like the hug is usually associated with a tight band feeling, although some websites say it can just The hug is affecting and/or causing the tingling in your feet and legs. Cherries or cherry juice alleviates pain and inflammation. A few do, however, report they’ve experienced it everyday for years. e. I get the… Is there a “mild” MS hug? I just realized that something I’ve been experiencing for a few years might be an MS thing. Sometimes it includes signals of sharp pain that take my breath away. Wakes me up out of my sleep at around 4am and comes and goes in waves for a few hours. Don't fall into the rabbit hole. Would you mind describing how it feels to you? I ask because I keep wondering if the hug is what I am feeling. My MS Hug is right below my breasts, they last from 1-30 seconds at most. single. Learn what it feels like, treatments, and more. quphz lpxs ynnpil amelzov melmal sfnzt yktkw hrht lduzl ucwclz